| A Mother’s Rest | amothersrest.org | 443-480-3946 | A Mother’s Rest coordinates affordable respite retreats for parents and other family caregivers of people with disabilities or chronic illness. Instead of providing childcare, the program gives the caregiver time away in a supportive setting to sleep, decompress, connect with peers, and return home better able to sustain demanding care responsibilities. |
| ARCH National Respite Network | archrespite.org | 703-256-2084 | ARCH provides a national respite locator and caregiver education for families who need a safe break from continuous caregiving. The directory helps families search by state for respite agencies and related supports, while its guides explain how to evaluate providers, pay for respite, and prepare the child and caregiver for services. |
| Caregiver Action Network | caregiveraction.org | 855-227-3640 | Caregiver Action Network provides free education, checklists, videos, and a national help desk for family caregivers. Its resources address communication with clinicians, medication management, caregiver stress, financial organization, workplace concerns, and self-advocacy across many diagnoses and age groups. |
| Childhood Tracheostomy Alliance | childhoodtrach.org | 888-845-8698 | The Childhood Tracheostomy Alliance brings medical professionals and experienced parents together to support families of children with tracheostomies or ventilators. It offers caregiver education, a supply closet, financial-assistance grants, state resource lists, and a community that understands the safety concerns and emotional demands of caring for a child with an artificial airway. |
| Complex Child | complexchild.org | Use website contact form | Complex Child is an online magazine written by parents of children with complex medical needs and disabilities. Its articles address equipment, feeding, respiratory care, nursing, insurance, school, travel, mental health, grief, family relationships, and practical problems that are often missing from standard medical education. |
| Courageous Parents Network | courageousparentsnetwork.org | Use website contact form | Courageous Parents Network provides free videos, podcasts, guides, parent stories, and decision-making tools for families caring for a child with serious illness. Its content addresses anticipatory grief, uncertainty, sibling needs, communication with clinicians, palliative care, difficult decisions, and finding meaning while continuing to parent through complex circumstances. |
| Family Voices | familyvoices.org | Use online affiliate directory | Family Voices is a national family-led network for children and youth with special healthcare needs and disabilities. Families can locate a state affiliate or Family-to-Family Health Information Center for peer support, systems navigation, insurance education, transition assistance, and help making their voices part of healthcare decisions. |
| Feeding Matters Power of Two Program | feedingmatters.org | 800-233-4658 | Feeding Matters pairs families affected by pediatric feeding disorder with trained peer mentors and provides access to support groups and educational tools. Caregivers can talk with someone who understands feeding stress, medical appointments, tube feeding, growth concerns, and the emotional impact mealtimes can have on the entire family. |
| FOCUS + Fragile Kids | focus-ga.org | 770-234-9111 | FOCUS supports Georgia families raising children who are medically fragile or have significant physical or developmental disabilities. Services include parent support groups, hospital outreach, educational conferences, camps, family activities, equipment assistance, sibling support, and a community of caregivers who understand the realities of intensive daily care. |
| Georgia Lifespan Respite Care Network | galifespanrespite.org | 866-552-4464 | Georgia’s Lifespan Respite network helps unpaid caregivers learn about respite services, voucher opportunities, and local caregiver resources. The program can be useful for families who do not know which agency serves their county or how to begin locating a qualified provider for a child with specialized needs. |
| Mended Little Hearts | mendedhearts.org | 888-432-7899 | Mended Little Hearts supports families of children with congenital heart disease through peer connections, hospital outreach, educational resources, and local groups. Parents can speak with other heart families about hospitalization, surgery, recovery, school, siblings, and the long-term emotional impact of caring for a child with heart disease. |
| Oley Foundation | oley.org | 518-262-5079 | The Oley Foundation supports people who depend on tube feeding or intravenous nutrition and the families who care for them. It offers peer mentors, educational materials, equipment and supply exchange, conferences, newsletters, and practical advice on school, travel, troubleshooting, insurance, and daily life with nutrition support. |
| Parent to Parent of Georgia | p2pga.org | 770-451-5484 / 800-229-2038 | Parent to Parent of Georgia matches families with trained supporting parents who understand disability and complex-care experiences. It also offers workshops, information specialists, transition resources, support-group connections, and a large searchable database, allowing caregivers to ask highly specific questions instead of navigating thousands of programs alone. |
| Parent to Parent USA | p2pusa.org | Use website contact form | Parent to Parent USA connects families with state programs that provide one-to-one emotional and informational support. Trained volunteer parents are matched based on diagnosis, family experience, language, or another shared concern so caregivers can speak with someone who truly understands the situation. |
| Southside Support | southsidesupport.org | 803-261-5370 | Southside Support connects special-needs families in Atlanta’s southern communities through support groups, events, a resource directory, and an annual empowerment summit. Its network allows caregivers to exchange local recommendations, find inclusive services closer to home, and build relationships with families facing similar challenges. |
| Spectrum Autism Support Group | spectrumautism.org | 770-239-6630 | Spectrum offers metro Atlanta support groups, respite programs, camps, social-skills activities, family events, and resource navigation for autistic individuals and their families. Programs support parents, siblings, children, teens, and adults, creating continuity beyond the early years of diagnosis. |
| The Caregiver Space | thecaregiverspace.org | Use website contact form | The Caregiver Space is a national online community where family caregivers can share experiences without judgment. Moderated groups and articles address burnout, grief, relationships, boundaries, mental health, financial stress, and the isolation that often accompanies long-term or medically intensive caregiving. |
| Together We Care Georgia | togetherwecarega.org | 678-270-2462 | Together We Care helps Georgia families navigate disability services, applications, planning, employment, and community support. Its programs are designed to move families from simply receiving a list of agencies to receiving practical guidance with organizing next steps and building a longer-term plan. |
| We Are Brave Together | wearebravetogether.org | Use website contact form | We Are Brave Together supports mothers of children with disabilities, medical complexity, or other special needs through peer groups, retreats, workshops, and a private online community. The organization emphasizes honest conversation, caregiver mental health, and lasting relationships rather than expecting mothers to manage every challenge alone. |
| YourRespite | yourrespite.com | Use website application | YourRespite is an Atlanta-area nonprofit that arranges in-home childcare for children with special needs, generally through age 19. Its model helps families who need a safe break but struggle to find sitters who are comfortable with disability, behavior, communication differences, or extra daily-care responsibilities. |
